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Fibromyalgia (FM) and
Chronic Myofascial Pain & Dysfunction (CMPD)
Information for Patients and Supporters
with Devin Starlanyl

 

       Recommended Reading:
       Daily Coping

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Sharing Housing , by Annamarie Pluhar.
If you are considering sharing your home with someone, or sharing someone else's home, this book has what you need to know to take the worry out of the process.
 
   
Help, Thanks, Wow: The Three Essential Prayers,by Anne Lamott.
If you feel overwhelmed and think you need to get in touch with a Higher Power, this little book will give you a lot of what you need to know.
 
   
Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome and Myofascial Pain: The Mind-Body Connection, by Celeste Cooper, RN, and Jeffrey Miller, PhD.

 
   

How to Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers, by Toni Bernhard

 

This book can help readers to get through the dark tunnel of chronic illness. It teaches coping skills that can benefit all of us.

   

Minding the Body, Mending the Mind, by Joan Borysenko

 

Are you struggling with negativity as you deal with chronic illness? This book may help you change your mind and body in a positive way. The author explains insights from psychoneuroimmunology research in an understandable way. She then teaches how to use this mind/body connection to improve your quality of life.

   

Self-Hypnosis: The Complete Manual for Health and Self-Change (2nd edition), by Dr. Brain M. Alman and Dr. Peter Lambrou

 

This is a very comprehensive and understandable guide to using self-hypnosis. It starts simply so you can use it right away, and also includes advanced techniques.

   

10 Simple Solutions for building Self-Esteem: How to End Self-Doubt, Gain Confidence, and Create a Positive Self-Image, by Glenn R. Schiraldi

 

The title says it all.

   

Rituals of Healing: Using Imagery for Health and Wellness, by Jean Achterberg and Barbara Dossey

 

This is one of the best books I’ve seen on imagery.  It is a powerful tool you can develop to direct your mind and body towards new paths of healing.

Coping With Anxiety, by Edmund Bourne, PhD and Lorna Garano

This book is an informative, well-written, easy-to-read guide for coping with anxiety.  We live in a world of stress, and that world can seem overwhelming at times.  This guide can be helpful for anyone struggling to cope.

   
Wellness Recovery Action Plan, by Mary Ellen Copeland. 

This book presents a system developed and used successfully by people with a variety of physical and emotional symptoms. It has helped them use self help skills more easily to monitor their symptoms, decrease the severity and frequency of symptoms, and improve the quality of their lives.

The Seven Sins of Memory: How the Mind Forgets and Remembers, by Daniel L. Schachte

In spite of the use of words like "sins" to describe memory dysfunctions, this book has a lot of good information.  It helps to understand that the common memory deficits — transience, absent-mindedness, blocking, misattribution, suggestibility, bias, and persistence — are different, and each of them can be remedied.

The Art of Being a Patient: Taming Medicine (An Insider’s Guide: Becoming a Proactive Partner and Self-Advocate of Your Own Health by Understanding), by Phillip Caravella

This book is an easy to understand guide to help you manage your own medical care.

Living Well with a Hidden Disability, by Stacy Taylor with Robert Epstein

This book is a treasure which will help those of us with hidden disabilities cope with a world that often refuses to acknowledge or validate our conditions.  There are sections emotional issues, physical issues, health care provider issues, love and sex, parenting, the workplace, and dealing with the public.  The workbook sections are also very helpful.

Serenity to Go: Calming Techniques for Your Hectic Life, by Mina Hamilton

This is a fun book that can introduce you to practical mind work techniques.

The Woman's Guide to Total Self-Esteem: The Eight Secrets You Need to Know, by Stephanie Dillon and Christina Benson

 

Many people with chronic illnesses lack self-esteem.  This lack can add to emotional imbalance.  Get your self-esteem back, learn how to assert yourself, and learn how to advocate for yourself in a positive way.

Disappointment with God, by Philip Yancy  

This book explores the questions that many of us with chronic pain may ask.  Is God Unfair?  Is God Silent?  Is God hidden?  This book is written from a Christian viewpoint but is suitable for the non-Christian as well.

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Embrace Tiger, Return to Mountain: Spiritual Conflict Management, by Gary Simmons (Reader)

Of all the audio tapes I reviewed for the 2nd edition of the Survival Manual, I thought this one was one of the best.  It blends Judeo-Christian philosophy with the Tao and does it well.  The author and narrator is both a Unity minister and a martial arts instructor.  It is a guide for dealing with conflict and fear in the journey of life.  I will listen to this tape many times.

Click to order book.

Recovering from Depression: A Workbook for Teens, by Mary Ellen Copeland and Stuart Copans

Caught in-between childhood and adulthood, teens live in a special world.  Teens with chronic illness are even more at risk for depression.  This book can give them the helping hand they need to bring them out of that valley of confusion and turmoil.

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Healing the Trauma of Abuse: A Woman’s Workbook, by Mary Ellen Copeland, Maxine Harris, 2000

If you are a woman who has survived abuse, this book may be what you need to help gain control over the demons of the past.  If you still feel victimized, you CAN overcome it.  This book gives you help.

Alternative Treatments for Fibromyalgia and Chronic Fatigue Syndrome, by Mari Skelly and Andrea Helm

This book is a gem.  There are patient stories as well as sections written by different varieties of care providers, including an osteopath, an acupuncturist, varieties of body workers and mind workers, and a lawyer.  This book also explores narcotics and marijuana use for chronic pain.  It is put together very well.  I am very pleased to have a section in it.

The Enchanted World of Sleep, by Peretz Lavie, Dean of the Faculty of Medicine at the Technion--Israel Institute of Technology in Haifa

If you want to understand the mechanics behind sleep, dreams and biological clocks, read this one.  Lack of restorative sleep is a major perpetuator of both fibromyalgia and chronic myofascial pain.  This is the best book I found that both explains sleep and sleep disorders and then helps you identify the factors that are affecting your quality of sleep.

The Promise of Sleep, by William C. Dement, MD, PhD, and Christopher Vaughan

If you want to lean more about sleep in great but enjoyable detail, this book is for you.  It is a BIG book, written by one of the greatest pioneers in the field of sleep research.  If you have periodic limb movements, myoclonus, or other sleep problems, or need your sleep habits changed, you should at least suggest that your library purchase this book.

Job-Hunting Tips for the So-Called Handicapped or People Who Have Disabilities: A Supplement to What Color Is Your Parachute?, by Richard Nelson Bolles, 1992
Accessible Gardening for People with Physical Disabilities: A Guide to Methods, Tools & Plants, by Janeen R. Adil
Getting to Sleep : Simple, Effective Methods for Falling and Staying Asleep, Getting the Rest You Need, and Awakening, by Ellen Mohr Catelano

Traveling....Like Everybody Else: A Practical Guide for Disabled Travelers, by Jacqueline and Susan Gersten. Freedman, 1987

This book gives helpful hints for those of us who would like to travel but have remained close to home due to the logistics involved in traveling with a chronic pain condition.  You need a vacation.

Mainstay: For the Well Spouse of the Chronically Ill, by Maggie Strong

For the well spouse.  This book validates and supports those spouses and partners who support us, and covers some of their special needs.

Beyond Rage: Mastering Unavoidable Health Changes, by Joann Lemaistre
Making Changes: Family Voices on Living with Disabilities, by Jan A. Spiegle (Editor), Richard A. Van Den Pol, 1994
How to Run a Support Group, by Bev Spencer, National Foundation for FM, PO Box 3429, San Diego, CA 91263-1429

The Special Needs Project, 3463 State Street, #282 Santa Barbara, CA 93105, 800-333-6867.  Send for catalogue of GREAT and inexpensive books, such as:

Coping with College: A Guide for Academic Success, by Alice L. Hamachek

(section on learning disabilities)

Beautiful Again: Restoring Your Image and Enhancing Body Changes, by Jan Willis


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